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Lydia Ould Brahim, RN, MSc, PhD Candidate*, Ingram School of Nursing, McGill University, Montreal, Canada, Sylvie D Lambert, RN, PhD, Ingram School of Nursing, McGill University, Montreal, Canada, St. Mary’s Research Centre, Montreal, Canada, Nancy Feeley, RN, PhD FCAN, Ingram School of Nursing, McGill University, Montreal, Canada, Centre for Nursing Research & Lady Davis Research Institute, Jewish General Hospital, Montreal, Canada, Jane McCusker, MD, DrPH, Epidemiology, Biostatistics and Occupational Health, McGill University, Montreal, Canada, St. Mary’s Research Centre, Montreal, Canada, Dan Bilsker, PhD, Department of Psychiatry, Faculty of Medicine, University of British Columbia, Vancouver, Canada, Mark Yaffe, MDCM, MClSc, CCFP, FCFP, Departments of Family Medicine, McGill University and St. Mary’s Hospital of the, CIUSSS du Centre-Ouest-de-l’Île-de-Montréal, Montreal, Quebec, Rosetta Antonacci, RN, MScAdmin, Ingram School of Nursing, McGill University, Montreal, Canada, Stephanie Robbins, MSc, Department of Nursing, Université du Québec en Outaouais, St-Jérôme, Canada, John Kayser, RN, PhD, CIUSSS du Centre-Sud-de-l’Île-de-Montréal, Montreal, Canada, Christine Genest, RN, PhD, Faculty of Nursing Sciences, Université de Montréal, Montreal, Quebec, Canada, Haida Paraskevopoulos, RN, BSc(N), St-Mary’s Hospital, Montreal, Quebec, Jessica Blair, MSW, M.Sc.(a), CFT, Montreal, Quebec, Canada
Comments
Great poster Lydia, thank you for this important work!
Hi Lydia:
I agree with Sylvie-such important work, and it is disseminated effectively in your poster.
I’m wondering if you can share how you engaged steering committee members to be part of this work, and specifically recipient/caregiver partners?
Hello Sonia,
Thank you so much for taking the time to read over the poster and for your comment! This project was building on larger work in which the original individual depression intervention, DIRECT-sc, was developed and evaluated. As such, several members of the team who worked on these earlier phases of the project agreed to participate in this adaptation. We further reached out to other researchers and clinicians with expertise in dyadic and/or family intervention to round out the expertise. We sought balance in terms of frontline clinical experience (i.e., to help assess any implementation issues) and those with research expertise in the area (i.e., understanding of the core components of the intervention we did not want to accidentally interfere with). In terms of care recipient/caregiver partners, we collaborated with the Centre of Excellence on Partnership with Patients and the Public (CEPPP) who works with the SPOR (SRAP) in Quebec. They were very helpful in thinking through the specific goals upfront and avoiding common pitfalls when partnering with care recipients/caregivers. Ultimately, a patient partner who had collaborated with researchers on the team previously agreed to participate in this project. We decided to have different levels of involvement for care recipient/caregiver partners based on availability, experience, and comfort level. The care recipient partner on this team works in health research and felt comfortable joining all steering committee meetings and participating in every part of the project. The caregiver partner who participated did not want to attend meetings but agreed to meet with me individually to discuss all items and completed the surveys we used to determine steering committee level of consensus on suggested modifications. Overall, I felt that offering different levels of engagement was a helpful strategy in partnering.
I hope this answers your question! Please do not hesitate if you would like any further details! Thanks again!